With the passing of time

Hello everyone, sorry it has been so long since I have last written. Mark and I have been tackling my nervous system issues head-on ever since the weather warmed up here in Montana. That means we have been out and about a LOT lately. A few weeks ago we packed up our camping gear and we headed south for some warm weather and fresh air in hopes that it would improve my condition, and it did in many ways.

Emma

Emma, cold and unhappy, near Dead Horse State Park in Moab, Utah.

 

We started out with 2 days in Utah’s Moab area, then we headed south to Cortez, CO & into Arizona, then back up into Utah to visit the Snow Canyon Area. From there we went to Valley of Fire in Nevada, then Death Valley in California. All that was done in one week time!

For our second week we headed north, through California and out to the coast to see the redwoods and (aahhhh…) the ocean. As our week was winding down, we moved up the coast and inland toward the Walla Walla, Washington area to see my youngest son Cody. We haven’t seen him since he left Montana last June and I needed my kid fix.

When we finally arrived home, I was exhausted! I needed a vacation to recover from my vacation. So I spent much of last week cleaning up the camping gear and sleeping. I learned a lot about my condition though. First and foremost is that warm temperatures, sunlight and fresh air help tremendously. Secondly, we learned that sitting, overexertion and stress are triggers for my dysarthria and dystonia. This is way more than the doctors know about my condition and best of all, we learned it while having fun and saving thousands of dollars in medical expenses.

This has lead us to expand on my physical therapy and include bicycling into the mix. Yesterday, upon the encouragement of my 6 year old grandson, we went out and purchased two new bikes. We took them out last night for a ride around Warm Springs Lakes and they got terribly muddied, but I felt great. This morning was the second morning in a row that I was able to get out of bed without pain, muscle weakness or dizziness! I am psyched! For the first time since last October, I can see a light at the end of this terrible tunnel.

New Bike

On the artistic side, I have been working on another dish drying mat. The embroidery on this one is not as nice as the last few I made, but it will do just fine. I am hoping to have it completed by the end of the week.

So this is why I have been missing from cyber space for the past month. Hopefully I can start actively participating in my life again. It has been an exhausting journey for me these past 7 months, but I am hopeful that the worst is behind me and the best is yet to come.

Happy Creating!!

14 thoughts on “With the passing of time

  1. I hope you can stay on top and continue to feel so good! Camping is a must around here ever so often! Only we go in a RV for Leona has to have air conditioner if it gets to warm ,and no public restrooms for her.That embroidery is lovely.

    Liked by 1 person

    • We have been looking at RV’s Deb, but we can’t seem to find one that fits our needs. Everything is so big anymore and the older, used RV’s need too much work. Public restrooms have become an issue for us too, that is one of the reasons we are looking at an RV. Do you mind me asking about your daughter and her special needs? Thanks for reading my post and taking the time to reply. I hope you have a great afternoon.

      Liked by 1 person

      • It took us a while to find one,ours is a used fifth wheel. It is bigger which we need because of the wheelchair. Leona has cerebral palsy,heart condition,and rheumatoid arthritis with mental disability,while doctors thought years ago she wouldn’t make it pass 10 years of age ,she is now twenty and in fairly stable condition.

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    • Ha! we were headed to Mesa Verde, but we were informed that only one viewing sight was open, along with one camp area and one bathroom. All that combined with not having anywhere to walk the dog, other than the campsite, we gave up and moved on. No, we have not looked at Sprinter vans yet, but they are on our to-do list for the summer. I guess Dodge makes them with Mercedes engines, a very nice combination! Do you have one?

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  2. Such a lot of country you covered Bella! I am so happy to hear that you are feeling good this week! This winter just went on forever, we have finally had some warm days and it is a relief! We are heading to Bozeman for a short weekend with Girl #1 next week.

    Liked by 1 person

    • Hahaha, I have had more than my share of negative thinking this past winter Kerry. I think the thing that spurred me on the most though was my anger towards the medical profession in general. I had a choice give up completely (which I did a lot) or buck up and do the work that needed to be done to promote health and healing. None of it was easy, but the journey has had it’s interesting and entertaining points!

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  3. What a wonderful trip! I’m glad the warm weather and the exercise is helping you feel better. I saw on the news that Montana had a tough winter. We did not, here in CO, we’re going to be in drought and fire weather all summer I fear.

    Liked by 1 person

    • We did get hit hard here this year Stephanie, but we needed it. We have been in a draught for almost 20 years now, so the snow has been a blessing. Although right now we all have our fingers crossed that it will not melt too fast or we will have to trade in our hiking boots for boats. 😉

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